NF1 Research Open to Enrollment

Neurofibromatosis Type 1 Studies Open for Enrollment

Neural Underpinnings of Attention in Children with NF1 and Children with ADHD

We are interested in learning more about attention both behaviorally and neurologically in children with neurofibromatosis type 1. Research suggests that children with NF1 experience an elevated rate of attention difficulties in comparison to same-aged peers; however, there is very little research about how these difficulties manifest in the brain and how they change over time. Children are eligible to participate if they are between the ages of 7 and 11 who have been diagnosed with NF1 or have been diagnosed with ADHD. Participants must speak English as their first and primary language. Participation involves one session (about 2 hours) with cognitive tasks both with and without EEG. You will be asked to complete questionnaires about your child’s behavior and attention. All child sessions will be video recorded. Families who complete the session will receive a $40 gift card. Each child will also get to choose a book to take home. You may also request a summary of your child’s performance on the developmental testing measures. Research sessions take place at the Child Neurodevelopment Research Lab at the University of Wisconsin – Milwaukee, where we have the dedicated quiet space and the necessary electronic equipment. Sessions can take place during the week (morning or afternoon) or on weekends. To participate, please contact the Child Neurodevelopment Research Lab at the University of Wisconsin – Milwaukee at cnrl-eeg@uwm.edu. We look forward to hearing from you!

This research is supported in part by a Young Investigator Award to Sara Pardej from the Children’s Tumor Foundation and by a grant from NF Midwest.

For children with NF1: EEG study flyer & interest survey NF1

 

For children with ADHD: EEG study flyer & interest survey ADHD