In our research we seek to improve our understanding of the cognitive, emotional, and behavioral characteristics of children with Williams syndrome and children with neurofibromatosis type 1 (NF1) using questionnaire, interview, experimental, and observational methods. We also work to develop and assess intervention approaches for supporting the social and emotional functioning of children with Williams syndrome and of children with (NF1).
Among our projects, we are currently working on:
- Neurofibromatosis type 1:
- Characterizing the early cognitive and behavioral phenotype of children with neurofibromatosis-1 and the value of early assessment for understanding outcomes later in childhood
- Understanding the neural underpinnings of attention in children with NF1 using EEG approaches
- Examining the utility of a telehealth group to support improvements in peer relationships for adolescents with NF1
- Williams syndrome:
- Examining the utility of play and humor-infused gradual exposure therapy for fears and phobias among young children with Williams syndrome
- Developing and disseminating a video manual for clinicians to help young children with Williams syndrome overcome fears and phobias
- Addressing healthcare disparities using a community-engaged participatory research approach with families of Black children with Williams syndrome